Science & Research | November 11th, 2024

Survey on Neonatal Thrombosis (by the International Society of Thrombosis and Haemostasis Scientific Sub-committee (ISTH SSC), Neonatal Thrombosis working party)

This international survey aims to 1) assess global practices in the management of neonatal catheter associated venous thromboembolism (Neo CA-VTE) and 2) understand which practitioners are involved in the diagnosis and treatment of neonatal thrombosis.
The responses will help in developing a prospective data collection registry on neonatal thrombosis and guidance for management of Neo CA-VTE.

This survey will take approximately 10 minutes to complete - participation is voluntary and all responses will be kept confidential.
The survey was reviewed and given exempt status by the IRB at Lurie Childrens Hospital, Northwestern university, Chicago. Please contact Rukhmi Bhat, MD, MS at rbhat@luriechildrens.org with questions or comments.

Please answer the following questions pertaining to Neo CA-VTE to the best of your ability.
Survey link: https://redcap.nubic.northwestern.edu/redcap/surveys/?s=4TNJ3KWKHHMLJHDF

Note:
1. For the purposes of this survey, neonates are defined as term (37-40 weeks gestation) and preterm (< 37 weeks gestational age) babies, up to a corrected gestational age of 44 weeks.
2. Abbreviations used: VTE, venous thromboembolism; CA, catheter associated; Neo, neonatal; CHEST 2012, Antithrombotic Therapy in Neonates and Children 9th ed: American College of Chest physicians Evidence-Based Clinical Practice Guidelines; ASH 2018, American Society of Hematology 2018 Guidelines for management of venous thromboembolism: treatment of pediatric venous thromboembolism; UFH, unfractionated heparin; LMWH, low molecular weight heparin; APTT, activated partial thromboplastin time; FVLM, factor V Leiden mutation; PGM, prothrombin gene mutation; PC, protein C activity; PS, protein S activity; and AT, antithrombin activity.

Thank you for your time!

Heleen van Ommen (Erasmus Medical Center, Rotterdam, NL), Rukhmi Bhat, Ann & Robert H. Lurie (Children's Hospital of Chicago), Ronny Knol (Erasmuc Medical Center, Rotterdam, NL), Christian Hulzebos (Beatrix Children's Hospital, University Medical Center Groningen, NL)